You and your family are not alone.
Anyone can tell you about primary immunodeficiency disease (PIDD), but only a PIDD patient, family member or other caregiver can tell you what it’s like to live with PIDD. We firmly believe that the best education and customer service for PIDD is provided by someone who lives with it every day. That’s why we provide support directly from qualified consumer advocates who are members of the PIDD community themselves—patients, spouses, parents and others who live it each and every day.
Our consumer advocates can:
- Assist you with navigating the complex health care system in order to receive the treatment and support that you need
- Help you order and schedule supplies and drug deliveries, maintain in-home inventory and coordinate nursing support
- Provide education and support regarding PIDD to both the patient and caregiver
- Act as a link to both local and regional nonprofit and consumer support groups
Your consumer advocate is available to answer questions and minimize your fears and frustrations. You don’t have to wait to get the information and support that you need.
Call and speak with the director of our consumer advocacy program, Carol Ernst, at 800.559.3173.
Because I have a daughter with CVID who has received IgG therapy at home for 19 years, I want to make sure our PIDD consumers have access to the clinical care and support services I want for my own child.
Carol Ernst, RN, director of consumer advocacy